Celiac disease

Celiac disease is a genetic disease that causes a person to not be able to handle gluten.  If the person eats gluten then his ability to absorb vital nutrients declines.
I know that much, at least.
The doctors are trying to find out why my blood work shows me as malnourished, and celiac is the most likely candidate.  Funny, I don’t mind.  Of all the possibilities this one is one of the good ones.  I would be the first in the family diagnosed with it.  The fix is fairly simple, avoid gluten.  But, gluten is in a lot of different things… Wheat, barley, rye… Malt too… Fast food is pretty much out, no problem there, I can’t stand the stuff any way, I always feel sick after eating fast food.  (I wonder if my aversion to it has anything to do with my body saying it’s not good for me?)
I would have to give up most breads, cakes and cookies too.  Here again, this doesn’t bother me, I naturally don’t eat a lot of bread.  (Is this my body avoiding things I shouldn’t have?)  I do like bread but I don’t need it to feel satisfied.  I love potatoes and rice and these would be ok for me to eat.  I am beginning to see a pattern.  If I listen to my body I’ll be ok.  Neet how that all works.

I wrote the above a few months ago. I have, since then, been diagnosed with Celiac. My diet has changed much more than I expected. I have to read the labels on absolutely everything that has been processed. One barbecue sauce may be ok while the other ten I look at won’t be. I have to worry about light mayonnaise and other staples. Mixed nuts? Yup, some of them have gluten in them. What about beer… no way, barley is a no-no now. I remember clearly my first week on the gluten-free diet. I was out so much that I had to rely on fast food a lot that week. I nearly starved. I began to live off of peanut M&Ms and Diet Coke. Not that I mind, I love both of them. But everyday for five, six days as my only snack? Yeah. It didn’t satisfy. I have since bought myself several gluten-free snacks that I keep in my car. I also remember a time a few weeks ago where I actually filled up at a meal. I hadn’t realized that I was eating so little. One of the reasons for figuring out the diagnosis was that I was losing weight. I was at a healthy weight but I didn’t have room to lose more and the scale kept slipping a pound or two a week. One of the problems I’ve had all of my life was that when I get hungry I get grouchy and my blood sugar drops. I need to keep my weight steady and I need to eat frequent meals. Finally, I haven’t lost or gained any weight in the past few weeks. My gluten-free diet seems to be settling in. I’m getting used to it. People, friends, ask me why I don’t get upset about not being able to eat something I like, or want to eat. My answer, “I have to give up some things so I can be healthy. I could have been dealing with something much, much worse than Celiac and I’m happy that I’m not. I can’t change it so there’s no need to worry or get upset about it.” It’s like having freckles or being short or having curly hair. I can affect it some but I can’t really change it. I just have to accept who I am and move on.

I hope you can accept who you are and enjoy every aspect of it. You are who you are because that’s the way it is. Change what you must but accept what can’t be changed and move on.

Thanks for reading,


What are your dreams?

What makes life great? What is it that you love? Who? Why? I believe I may be a bit reminiscent tonight. What do you want? I mean what do you REALLY want? If money was no object, family pressures was no object, time was no object? What would you do? What if you were free from all the constraints that you’ve put on yourself? Free from your religion, free from it all? What ONE thing would you want to do with your life? It’s like the genie in the bottle, only you get just the one wish. Think carefully. It’s just the one, nothing more. What’s the first thing you think of? Don’t hide it, just acknowledge it and keep it in your mind. What is it you wish for more than anything in the world?

We’re all human. We all have dreams, we all have needs. You know what I want? I want to live, I want to fly, I want to dream… I want my kids to grow and be healthy, to have amazing lives. I want to climb mountains and go down in caves. I want go deep sea fishing, or just sail to no where. I want to live in Hawaii, actually not really. I want to visit the beach at the crack of dawn and search for shells. I want to stand on the edge of a mountain top and feel the wind blow through my clothes. I want to be smothered by kisses from my four year old. I think I want to actually finish Moby Dick? But I’m not sure its worth it. If it is please let me know. What do you want?

Do you want someone to hold you tight, to love you and never turn loose? Or someone to pick you up and spin you around and tell you that you are the world to them? Do you want someone to be your confidant? Your cherished friend? Do you want some one to kiss you until you can’t breath? Or More? Its ok. Life is short, and worthless, with out dreams. If you don’t have dreams, make them, take the chance. You might not get there but you won’t get anywhere without the dream first. And when you die you can know that you actually lived.

till we meet again,

Bragging rights

I am riding on the wind.  I have just returned from camping with my Venture Crew, Venture Crew 320.  Our crew has some of the most beautiful women there are, both inside and out.  They decided to participate in a high adventure race.  The race had a time limit of six hours.  In that time they had to climb a forty foot tower(the hard side if you know anything about climbing towers), kayak around a lake, find an unknown item, use orienteering skills, mountain bike on terrain meant for leaving alone and find several points of interest only locateable from specific coordinates.  Once the time was up they needed to be back at the shelter, losing points for each moment late.  My girls were second place by ten seconds.  Every one who took part in the race was stretched and challenged in amazing ways.  Points were given for finding and doing each part.
     The teams were able to “attack” the race in any order they chose.  When it was time to start every team chose to go in different directions.  The first part of the race was on foot.  Afterward they took their bikes to find each of the points.  About four hours in the race one team called in to say they were lost and then, shortly after another team was lost.  After they received advice based on where they were they were left to their own devises.  All of the young men and women were on their own until the time was up.  We adult leaders waited anxiously when the six hours were up and no one was back.  After about 15 minutes we saw two teams coming in.  What a great moment that was!  The third team  finally showed about ten minutes later.  The adult leaders were discussing where they likely were and about to go and find them to pick them up when we heard the first bike of the last team coming down the road.  We are so proud of all of the venturers.  They finished a race meant to challenge endurance, knowledge and team cohesiveness.  Every one surpassed all of our expectations.

Thanks for reading,